Tattooed Indie Documentary Star Raises Awareness for Rare Diseases

Dylan McDonnell is taking part in an Indie movie night showing a documentary he starred in which highlights dealing with rare diseases
Dylan McDonnell 38, from Ganesvoort NY lives every day with a debilitating disease that afflicts only about 1 in 50,000 people in the United States. Friedreich's Ataxia (FA) is an incurable disease and a neuromuscular disorder that has left Dylan in a wheelchair. He likens it to having to consciously think about your every move. What you and I take for granted like walking, talking and eating Dylan has to think about it intensively before any movement.
Dylan starred in an indie documentary called UPSTATE BOYS directed by Shane Borza which tells both of their stories one struggling with a debilitating disease and the other tackling challenging climbs around the world. It's a film about loss, struggle and inspiration. The movie was shown on February 29th along with other documentaries and excerpts in a special movie night dedicated to raising awareness of rare diseases. Despite having to live with a debilitating illness Dylan lives life to the fullest and his collection of tattoos reflect his attitude to making the most out of the life we have.
Dylan has many tattoos on his body from full hand to shoulder ink and neck tattoos
Dylan McDonnell with film-maker Shane Borza
Photo courtesy of John Carl D'Annibale / Times Union
Photo courtesy of John Carl D'Annibale / Times Union
Cool bone tattoos! Photo courtesy of John Carl D'Annibale / Times Union